The average life expectancy for those diagnosed with motor neurone disease is 27 months from diagnosis.
For loved ones, the impact the disease has was profound and far-reaching.
About 250 Pakenham and South East locals came from far and wide to take part in MND Victoria’s 2024 Walk to Support event at Lakeside Amphitheatre on Sunday 27 October to raise much-needed funds to support those with the disease and their carers and loved ones, with the event raising more than $15,000 towards the cause.
Among the key attendees of the day was Pakenham MP Emma Vulin, who said she found the day both emotional and inspiring.
“Many MND sufferers, their families and people impacted by this insidious disease either who are dealing with this now or have lost loved ones, gathered to support each other,” she said.
“So many people show their love and support and continue to show great strength and kindness.
“I could name hundreds individually, but I will just say a big thank you to each and every one of you.”
Event co-organiser Joanne Staindl said with this year being the fifth year running event, it was inspiring to see those with MND coming out and meeting with others touched by the disease.
“They realise they’re not alone,” she said.
“The event was a chance to give back.”
Losing her father to MND in 1992 and her brother in 2020, Ms Staindl said she would be forever grateful for the support she received from MND Victoria while caring for her brother.
“They were always at the end of the phone for me,” she said.
“There was no waiting list for counselling.
“It’s beyond words how important that is.”
To support the event, visit mnd.org.au/events/187/walk-to-support-2024
